2008 HIPAA Summit and Privacy Symposium

Memorial Church of Harvard University, the loc...Image via Wikipedia

I’m attending this conference for the next few days at Harvard University and will do some live blogging here as the mood or content strikes me. One of my reasons for being here is to make sure I’m up-to-date on HIPAA privacy and security requirements and to get a reality check on the emerging issues. The Harvard Faculty Club  has wireless and the conference staff is very helpful. Good signs for the rest of the day.

8/18/08

7:55 am Hand out materials seem very thorough and on-line resources indicated as well. Good stuff.

8:10 am Attendees intro, impressive group of privacy compliance people from a variety of medical institutions. Some IT, HR, lawyers, consulting folks here as well.

8:15 am Course offers various certifications in HIPAA.

8:30 am HIPAA: “The right thing to do.” We are now into the overview of HIPAA as protection from discrimination as consumers of health care. Meant to guarantee privacy. It’s about policies, procedures and Business Associate Agreements.

8:35 am Now outlining the non-privacy aspects of the HIPAA law like insurance portability and health care fraud.

8:55 am Yes It was expensive to implement the transaction sets! A little HIPAA boosterism starting to surface in the presentation, a little idealism compared to the difficult reality of that experience.

9:02 am Going over national medical errors numbers, the uninsured — sort of a health care reform overview. Future is about innovation and integration of technology. Big HIPAA issue was the pushback from health care institutions. No HIPAA-in-a-box solution: must be reasonable and appropriate re the protection of health info as well as measurable and manageable.

9:20 am Really need 3 levels of ‘Business Associate Agreements’: one say for the office cleaners who have some/limited access to stuff on your desk etc – low risk level, some training and rules for them; Another level would be vendors and contractors where you store medical info for example – higher risk level, more detailed. Need a low, medium and high risk business associate agreements.

9:50 am Many states have stricter privacy standards than HIPAA. These statutes are allowable, of course, under HIPAA.

(So far presentation is going over typical HIPAA orientation material, nothing really new, but folks have a variety of questions that reveal a certain higher level sophistication of the audience. Should start getting into more depth soon.)

10:20 am Stuff still happens, but you have to do what’s “humanly possible” to protect medical information. It is “amazing” the number of people who have access to our information.

10:30 am How do you de-identify information? Remove identifiable information ( use HIPAA safe harbor method of 18 specific terms. Re-identification codes are allowed.) But there may be other items of course which would would identify the individual. So not fool proof. “Limited Data Sets” are also allowed for research.

10:45 am “Use” refers to how info flows within an organization under HIPAA. “Disclosure” refers to info transmitted outside the health care organization. Disclosures: routine, mandatory, non-routine, and incidental.

11:10 am Non-routine disclosures must be on the ‘accounting of disclosures’ available to the patient.

11:30 am I finally ask questions about the new national privacy framework now being developed in Congress, and of course my favorite topic, “privacy 2.0″. HIPAA is about ‘Privacy 1.0″ — institutions, professions and the privacy rules imposed on them. Privacy 2.0 is about social media and health information. Response is that HIPAA is a floor that has to be built upon. More to come.

11;45 am HIPAA is a process not an event. Now you are compliant . . . wait a minute . . . now you’re not. Things change everyday.

(So far we’ve only touched lightly on the more problematic aspects of HIPAA such as the risks that covered entities endure dealing with the seemingly endless ambiguity endemic to government guidance, regulations and laws.)

1;00 pm Patient can agree to get notice of privacy practices electronically in some cases.

1:40 pm HIPAA has a unique policy in regard to Psychotherapy Notes. It is not seen as a part of the medical record and has special rules for disclosure.

1:50 pm Back to Business Associate Agreements. Does Medicare Part D (Drug Benefits) trump the HIPAA rules when it comes to the the degree of monitoring of Business Associates?

2:10 pm “Hybrid Covered Entity” — may have functions that are HIPAA covered but others that are not. Can be separate procedurally but no need to separate physically. May have several regulatory agencies to answer to. HIPAA’s “Group Health Plan” designation may be one of these (employer and covered entity).

2;55 pm ‘Minimum Necessary’ HIPAA rule has pervasive effects on internal use when it comes to access management systems and job descriptions that are often more burdensome than managing external disclosures.(my comment).

3:25 pm On to HIPAA security rules!

3:50 pm Security oversees Confidentiality, Data and Source Integrity, and Availability to Authorized People.

4:00 pm HIPAA Security rules are comprehensive, technology neutral and scalable to all organizations. “One size fits all – satisfy the regs with appropriate approaches to every organization.

(Ok, good enough for today)

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Searching for Kafka’s Dog

There’s a debate in literary circles as to what kind of a guy was Franz Kafka.  A recent biographical description sees him as an unexceptional student, a strong swimmer, an aerobics enthusiast, engaged three times, liked by his employer, promoted at work and other similar sorts of normal characteristics. Oh yes and he was author of seven books. This view flies in the face of his legend: mystery, alienation and an auger of the then emerging totalitarianism the world was to experience.

Now it seems that dogs are conjured up everywhere in Kafka’s writings.  Michael Löwy writes, for example:

For Kafka, the dog represents an ethical category — if not a metaphysical one. The dog is actually all those who submit slavishly to the authorities whoever they may be.

In this image, he is pictured with a dog. And most times a dog is, well, just a dog. Yet this is Kafka, and maybe a dog is something else altogether — as implied by his rather famous quote in my graphic above. Even this quote, which touches on some sort of philosophical and spiritual reverence for dogs, is misleading once you put it in literary context -it’s a dog speaking about his own dog nature.

At the end of his life, Kafka wrote a short-story, oddly enough called ‘Investigations of a Dog’, where he takes us through a dog’s search for meaning, which in dog terms, eventually equals food.

“I know that it is not one of the virtues of dogdom to share with others food that one has once gained possession of.”

The dog investigator asks, but dogs, he finds, admit nothing because the world of dogs, he discovers, is “pledged to silence”.

“Every dog has like me the impulse to question, and I have like every dog the impulse not to answer.”

So what can we ask the dog about the man in the photograph ? Was he a good friend to you? Did he feed you well, take you out for exercise? Did he talk to you, reveal any of his hopes or demons? Were you listening?

Yes we could ask the dog these questions and more, and try to get clarity on the debate over what kind of man Kafka really was. But the legend, I’m afraid, has beat us to the punch. Dogs, it seems, keep their confidences, and their food, to themselves.

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My Personal Review of TINYPASTE

Engraving by John Byddell of Truth, Image via Wikipedia

My personal review of TINYPASTE :

“This might be a useful app when you need more than the 140 characters that Twitter provides and space to drone on and on about something that could be said in just a few words if, in fact, you took the time to think about how to shorten your sentences and keep your thoughts organized in a way that is comprehensible to most of us, who, by the way, often have very little time to read the useless crap that typically comes from the long-winded, shallow minded, self-indulgent minions who form the pajama army and who can’t seem to argue their way out of a virtual paper bag but instead resort to name calling and gratuitous criticism that really comes from a distorted sense of their own importance which, my friends, masks an astounding and psychoanalytically pregnant Mt Everest of self loathing only to be matched by an abyss of talent or insight.”

Hmmm. This is fun.

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Health Care Privacy 2.0: Let the Seepage Begin

An image of a 1901 examination in the faculty ...Image via Wikipedia

The challenges of privacy 2.0 (see previous post) are here and now. From the Kaiser Daily Health Policy Report:

Physicians and nurses who maintain blogs are not taking sufficient measures to protect the identity of the patients about whom they write, according to a study published last week in the Journal of General Internal Medicine, the Los Angeles Times reports. For the 2006 study, author Tara Lagu — a Robert Wood Johnson Foundation Clinical Scholar and an internal medicine specialist — examined 271 blogs that were maintained by physicians or nurses.

The study found that about 65% of the blogs are written anonymously. The remainder included identifying names of their authors. About 45 blogs, or 17%, “included sufficient information for patients to identify their doctors or themselves,” the study said. About 42% of the blogs contained accounts of private interactions with patients and three blogs displayed photographic images of patients that easily made them recognizable. Despite only a few blogs including conflict of interest disclosures, 11.4% of the blogs contained postings that promoted specific pharmaceutical or medical device products.

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Steve Talbott: We are Losing the Battle for Digital Privacy

An EPC RFID tag used by Wal-Mart.Image via Wikipedia

Steve Talbott’s book Devices of the Soul: Battling for Our Selves in the Age of Machines is difficult reading, both for the truths embedded in it, as well as the tedious exaggerations he deploys in his scathing critique of digital technology, the internet and mostly all things virtual. Yet there is much to consider here, especially in his short, but poignant, chapter on digital privacy.

Some excerpts so you can get the drift of what he sees coming:

The battle for privacy, waged upon the fields of data, will be lost. . .

. . . the ideal of privacy gains substance only in those primary contexts where we know each other well enough to care. . . Lacking such contexts, we cannot win; we will be assimilated to the realities of our technology, where one data bit looks just like another and there can be no special protection for any of them.

Issues of personal respect don’t arise between packets of data, nor between information processing programs.

Rather we will have an endless contest between privacy-protecting software and privacy-invading software.

Within the global information system every piece of data is perilously close to being globally exposed . . .

If privacy is to emerge as a meaningful public value, it will be in the context of community involvement. Where else can we learn what needs respecting about each other, if not from a knowledge of the other person in particular and of the requirements of a healthily functioning community in general.

Here’s a simple principle to consider: if you are clearing the way for a new form of data transaction, or proposing some new mechanism for data privacy, then spend at least three times as much effort working towards a means for strengthening community outside those data contexts. Otherwise, you may well be helping to destroy the essenial milieu for any privacy worth having.

So how do we think about Talbott’s arguments when it comes to health care? Several challenges quickly come to mind.

  • How do we sensitize large institutions that manage medical information to the concerns of the community? In other words, how do we get medical institutions to care?
  • The emergence of ubiquitous computing in health care — RFID tags, remote sensing, medical surveillance and the like — presents special challenges when it comes privacy. Where is the community context for this technology?
  • What about privacy in the 2.0 world, where health information divulged in one social media, is collected for say commercial use in another?

Health care, as I have said many times, is the poster child for digital privacy issues.

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Ok. It’s time to get your PHR s**t together

Screenshot of Microsoft HealthVaultImage via Wikipedia

You’ve been collecting paper scraps of your medical history in that drawer for years now. And if you had any kind of life so far, you know that your oh-so-personal-and-private health care information is presently scattered all over creation. Now to be fair, you’ve dabbled at trying to put a personal health record (PHR) together, here and there, fits and starts. But that was just playing, tinkering with a neat program or web-service. As you moved on and realized what it would really take to get your PHR together, you said to yourself, as most of us do –”ahh, maybe later when I need it”.

Right.

Well, my friends the time has come to face up to the task. Google Health is calling you. Microsoft HealthVault is calling you. Hundreds of new PHR startups are calling you. Michael Moore is calling you. Geez, even your mother is calling you. Do your duty. Resistance is futile. So cowboy up to the job.

The time has come to get your PHR s**t together.

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